I'm back...and will try to be here more often. It's been a while and almost to a year from my last journal post.
A lot has happened but the most significant event was my mother passing away on 4th January 2016.
It's hard when someone so dear moves to eternity. Its hard when you look back, you realised that physically, she's no longer there, even though mentally, she left us 6 years ago.
Mom became frail towards the last half year of 2015. Some small illness crept in, stayed for a while and cleared. She started eating lesser and lesser each time it was my duty to feed her dinner on the helper's day off. She slept more....was talking lesser. Her feet swelled to the point that they looked like air pillows. Her blood started clotting on certain parts of her body, a condition called deep vein thrombosis (DVT). This happens when a body is not active. And if left untreated, will be fatal.
She didn't suffer. She was in no pain. Even if she was, it would be hard to know as she couldn't tell. But till the end of her life, she was the best patient any caregiver would be proud of.
Thinking of her still makes me tear. So I will write more about mom in another journal entry.
Jonathan has been doing great. One big discovery I made was his retching issue.
It was something that our family doctor brought up. Yet it didn't dawn on me until a few months back.
Whenever Jonathan has a cold or stuffy nose, it will always drain backwards because he is usually lying down. Then he will start gagging and retch and then there will be full blown vomiting that goes throughout the night. And this happened a few times until we were introduced to Promathazine by StarPal doctor. But still the condition will persist whenever he fell sick. Until one day, I felt that I should give him the cough mixture whenever I see him gag. And that was a miracle cure!
You see....our family doctor said to me once when we brought Jonathan to the clinic. He said, "I feel the vomiting is caused by his gag reflex." Of which I didn't think it was the cause then. And we will always wonder why the vomiting doesn't stop even though we administer the anti-vomit suppository or medicine.
It didn't occur to me then. But one day it rang in my head like a eureka lightbulb flashing. So now, each time I see him gagging and starting to retch, I will give him a dose of the cough mixture. That stopped the coughing, resulting in the ceasing of gagging and retching and viola! No more vomiting!
It did take me a long time to realise that Dhasedyl (cough mixture) was the answer to all this vomiting issues. So it WAS the gag reflex that was causing it! From then on, whenever signs of cold appear, he gets the cold and cough medicine and immediately he will feel fine.
I'm thankful for this discovery!
Well....Jonathan is now 19.5 years old. There are new issues I have to deal with and I'm dragging my feet. Ever since the last dental appointment and GA cleaning, he has refused to go to the dental center for checkup and he does need a cleaning now. Then there's this issue about changing primary medical care. He's been given an open date at KK. I will have to check about having a transfer to an adult hospital. And also his dietitian and changing the PEG button too! Then there is this Power of Attorney matter that i have to sort out too.
Sigh.....
All these matters will be journaled along the way.
As for myself, I have started to crochet again! It's a skill I picked up when I was 10 years old (another story to tell). Tshirt printing is a little slow these days (as there has been a surge of tshirt printers offering lower prices lately!!!). I hope to be able to do something more with my tshirt printing. So if you need any, please give me an email.
I will show you some of the yarn caps I crocheted soon.
Hope to find my visitors here well.
It's good to be able to journal again. God bless you all!
Sunday, June 26, 2016
Tuesday, July 07, 2015
WHEN LESS IS MORE
Throughout the whole episode of Jonathan's illness this past week, it bordered between anxiety and praying for wisdom.
Today, we had a good chat with Dr C from Starpal who made a trip down to check on Jonathan.
We talked about how much care is too much care or if not giving much constitute less care. Whether we become worried and send the child to the hospital immediately which may result in the child having more anxiety as he's being poked, checked and xrayed etc and with unfamiliar people around. Or do we analyse the situation before making a sound decision that will benefit the child.
I guess we all want what is best and want to give the best medical care. But going straight to the hospital quickly may not even be the right choice.
I guess as parents of a child with special needs, we sometimes don't know what his discomfort is. There will be such occasions when we are even tempted to quickly make the trip down to the hospital.
But I think for Jonathan, his years of being in and out of hospital since he was a baby, does give him an edge over us. He knows what it's like being poked, xrayed, laying in a big bed that has no security barrier for him and also having to wait...and wait...and wait forever.
That is why just saying the word "hospital" sends him into an angry mood.
Dr shared that even if we make the wrong choice, we have to learn that we have done our best for our child. Do not feel that what we are doing is not enough. We will not know what the future holds but we will always know what will be the best for Jonathan at the back of our hands.
So it was with Jonathan when he was sick this time around. I prayed for wisdom, because we just did't know what to do. But bottom line is, Jonathan trusts us to help him as much as possible.
While the GP has been an excellent help, I can't help but notice something:
GP prescribed one medicine for every symptom visible (there were 6 medicine for Jon). Today, Dr C saw Jonathan, advised to just give one medicine for the phlegm and continue with the ventolin inhaler. That's it (to our surprise) and if he had difficulty fallng asleep at night, just add the promethazine.
This is a new to me. I guess less is more. And without giving Jon the other medicine, I noticed he became more alert and was able to clear his throat better.
For me...lesson learned and a new experience gained.
Today, we had a good chat with Dr C from Starpal who made a trip down to check on Jonathan.
We talked about how much care is too much care or if not giving much constitute less care. Whether we become worried and send the child to the hospital immediately which may result in the child having more anxiety as he's being poked, checked and xrayed etc and with unfamiliar people around. Or do we analyse the situation before making a sound decision that will benefit the child.
I guess we all want what is best and want to give the best medical care. But going straight to the hospital quickly may not even be the right choice.
I guess as parents of a child with special needs, we sometimes don't know what his discomfort is. There will be such occasions when we are even tempted to quickly make the trip down to the hospital.
But I think for Jonathan, his years of being in and out of hospital since he was a baby, does give him an edge over us. He knows what it's like being poked, xrayed, laying in a big bed that has no security barrier for him and also having to wait...and wait...and wait forever.
That is why just saying the word "hospital" sends him into an angry mood.
Dr shared that even if we make the wrong choice, we have to learn that we have done our best for our child. Do not feel that what we are doing is not enough. We will not know what the future holds but we will always know what will be the best for Jonathan at the back of our hands.
So it was with Jonathan when he was sick this time around. I prayed for wisdom, because we just did't know what to do. But bottom line is, Jonathan trusts us to help him as much as possible.
While the GP has been an excellent help, I can't help but notice something:
GP prescribed one medicine for every symptom visible (there were 6 medicine for Jon). Today, Dr C saw Jonathan, advised to just give one medicine for the phlegm and continue with the ventolin inhaler. That's it (to our surprise) and if he had difficulty fallng asleep at night, just add the promethazine.
This is a new to me. I guess less is more. And without giving Jon the other medicine, I noticed he became more alert and was able to clear his throat better.
For me...lesson learned and a new experience gained.
Tuesday, June 30, 2015
FEVER CYCLE - BREAK FREE!
It's been a tiring journey for close to a month.
It started with Jonathan feeling unwell. Then H came down with flu and high fever. Then followed by me after H recovered. And I think I was hit the hardest. Having been given augmentin for antibiotics, the throat swelling was still persistent and the I had to top up another antibiotic. Thus the diahroea episodes began for me.
During the course of my illness, I wore a mask everyday in the hot weather so to protect Jonathan. Thankfully it did the job.
But as the days passed and I was beginning to feel better with lesser coughing, sometimes I go near Jonathan without wearing a mask.
This morning, he was his cheerful self. But came afternoon, when H carried him, H noticed that Jonathan's body was hot. A check revealed 38 degrees.
I was baffled. But I guess there's an infection somewhere. Have observed he was peeing less today. By afternoon the temperature escalated to 38.5 degrees and high fever medicine was given. It brought the temerature down by evening and he was feeling better
Now, temperature has risen. Will continue to sponge him. But I think I shall let nature takes its course. If high fever still persists, will call the doctor.
This has never happened for a long time already. Sometimes I'm anxious but at times I'm peaceful that Jonathan will pull through this. He's always a strong boy.
Thank you Lord for healing Jonathan. Thank you that this virus cycle breaks quickly!
Wishing everybody the best of health.
It started with Jonathan feeling unwell. Then H came down with flu and high fever. Then followed by me after H recovered. And I think I was hit the hardest. Having been given augmentin for antibiotics, the throat swelling was still persistent and the I had to top up another antibiotic. Thus the diahroea episodes began for me.
During the course of my illness, I wore a mask everyday in the hot weather so to protect Jonathan. Thankfully it did the job.
But as the days passed and I was beginning to feel better with lesser coughing, sometimes I go near Jonathan without wearing a mask.
This morning, he was his cheerful self. But came afternoon, when H carried him, H noticed that Jonathan's body was hot. A check revealed 38 degrees.
I was baffled. But I guess there's an infection somewhere. Have observed he was peeing less today. By afternoon the temperature escalated to 38.5 degrees and high fever medicine was given. It brought the temerature down by evening and he was feeling better
Now, temperature has risen. Will continue to sponge him. But I think I shall let nature takes its course. If high fever still persists, will call the doctor.
This has never happened for a long time already. Sometimes I'm anxious but at times I'm peaceful that Jonathan will pull through this. He's always a strong boy.
Thank you Lord for healing Jonathan. Thank you that this virus cycle breaks quickly!
Wishing everybody the best of health.
Saturday, June 06, 2015
NEW CONVAID CORDURA
Jonathan received his new convaid Cordura on 3rd June. I am super happy!
In January this year, I already prayed about getting a new buggy. Just that funds were short.
All thanks to the generous help of Star Pals. We were successful in the application for funding.
Jonathan's old buggy is 14 inch wide. He's outgrown it in height. His legs jut out of the seat and sitting too long on the buggy makes him tired. Although width wise there's still some space left, it has become too short for his long legs.
As I look back, I found out through my journal HERE that we bought the 14" in year 2010. In between 2010 and 2015, we changed the seat cushion once. The frame is still good. Even the staff from DNR Wheels commented that the CT14 is still in very good condition.
This new 16 inch buggy is broader, and when Jonathan sits on it, the seat base supports his legs. Height wise, seems he suddenly sprung up again and with the 5 inch extension in place, his head has already touched the extended backseat.
Here's what it's like between the old (picture right) and new (left) buggy.
Anyway, the prince says he doesn't mind sitting on the new buggy and that he preferred to have the headrest. We haven't brought it out of the house yet. It s a little lower than the new one.
What I'm so happy is that a table top was included in the order!
Thank you Lord for Star Pals and thank you Lord for your provision!
In January this year, I already prayed about getting a new buggy. Just that funds were short.
All thanks to the generous help of Star Pals. We were successful in the application for funding.
Jonathan's old buggy is 14 inch wide. He's outgrown it in height. His legs jut out of the seat and sitting too long on the buggy makes him tired. Although width wise there's still some space left, it has become too short for his long legs.
As I look back, I found out through my journal HERE that we bought the 14" in year 2010. In between 2010 and 2015, we changed the seat cushion once. The frame is still good. Even the staff from DNR Wheels commented that the CT14 is still in very good condition.
This new 16 inch buggy is broader, and when Jonathan sits on it, the seat base supports his legs. Height wise, seems he suddenly sprung up again and with the 5 inch extension in place, his head has already touched the extended backseat.
Here's what it's like between the old (picture right) and new (left) buggy.
See the difference below....
Anyway, the prince says he doesn't mind sitting on the new buggy and that he preferred to have the headrest. We haven't brought it out of the house yet. It s a little lower than the new one.
What I'm so happy is that a table top was included in the order!
Thank you Lord for Star Pals and thank you Lord for your provision!
Friday, May 15, 2015
WHAT A KANCHONG DAY!
This morning, I had H deliver shirt orders to a school here in the east. A few hours into the delivery, my whatsapp starting tinging a few times and deep down I had this gut feeling that something went wrong.
True enough.
Three shirts had errors on them. Two with names spelt wrongly and one with the number printed upside down.
What did I do? Can't blame the class. I followed the first list that had spelling errors and didn't double check on the updated list and took for granted that everything was in order, even though the wrong names were not highlighted. My fault :(
It didn't help that the kids will be wearing the shirts on Monday for an outdoor activity. More so today is Thursday and H has just left for town to get something from Bras Basah.
Another whirlwind situation. What to do but to pray.
Thankfully H was able to come back in time to pick up the faulty shirts from the school office before they close.
Next problem : When H came back with the shirts, I removed the faulty tranfers but stains from the adhesive remained on the shirts. And the biggest issue? I have run out of royal blue shirts!!!!
A quick call to my supplier that gave me an initial shock: "Oh...royal blue. Sorry we're out of XXS and XS at the moment."
Quick! Check the sizes that I need! They are all in size S! Phew!! They were available!!
So off H went out of the house to collect these new shirts from the supplier, even though he just stepped home one hour ago.
So while he was out, I started preparing the transfers. Thankfully by the time he came back, I had time to get them printed.
Thank God for H! Thank God he didn't have to work today! Thank God for His perfect timing!
Tomorrow, H has volunteered to send the three shirts to the school so that the kids will have them and wash them over the weekend before the outdoor adventure.
Another day's event, another day ends. At the end of everything, I was totally brainxausted haha!
Thank God for seeing me through everything. Hopefully everything else in my current orders will fall nicely into place.
Thanks for visiting! God bless!
True enough.
Three shirts had errors on them. Two with names spelt wrongly and one with the number printed upside down.
What did I do? Can't blame the class. I followed the first list that had spelling errors and didn't double check on the updated list and took for granted that everything was in order, even though the wrong names were not highlighted. My fault :(
It didn't help that the kids will be wearing the shirts on Monday for an outdoor activity. More so today is Thursday and H has just left for town to get something from Bras Basah.
Another whirlwind situation. What to do but to pray.
Thankfully H was able to come back in time to pick up the faulty shirts from the school office before they close.
Next problem : When H came back with the shirts, I removed the faulty tranfers but stains from the adhesive remained on the shirts. And the biggest issue? I have run out of royal blue shirts!!!!
A quick call to my supplier that gave me an initial shock: "Oh...royal blue. Sorry we're out of XXS and XS at the moment."
Quick! Check the sizes that I need! They are all in size S! Phew!! They were available!!
So off H went out of the house to collect these new shirts from the supplier, even though he just stepped home one hour ago.
So while he was out, I started preparing the transfers. Thankfully by the time he came back, I had time to get them printed.
Thank God for H! Thank God he didn't have to work today! Thank God for His perfect timing!
Tomorrow, H has volunteered to send the three shirts to the school so that the kids will have them and wash them over the weekend before the outdoor adventure.
Another day's event, another day ends. At the end of everything, I was totally brainxausted haha!
Thank God for seeing me through everything. Hopefully everything else in my current orders will fall nicely into place.
Thanks for visiting! God bless!
Thursday, May 14, 2015
EVERYDAY THE SAME...WITH A BIT OF GOOD NEWS :)
Wow.....I just realized my last post was almost two months ago.
Time flies when you don't keep track.
Everyday is the same activities. Jonathan wakes up, request to listen to some Christian worship songs, then it's time for feed, and after half an hour, he would want to watch his TV game shows.
Then the whole day will be repeated activities. I'm not bothered as long as he stays healthy.
Well...Jonathan had a sudden vomitting episode that sprang out from nowhere just 2 days ago. It's odd that it comes suddenly, he throws up from 10pm till maybe around 2am and then with all the medication we gave him, it helped him sleep till the next morning and he wakes up smiling and happy.
My friend said perhaps it's because his tummy is windy "hong". I don't know. I would think it's a gag reflex. Whenever there's drainage from the nose, it irritates his throat and then he starts coughing and stimulates the gag reflex and thus causing him to throw up. There are times we know it's the tummy that churns. So it's rather confusing.
But for whatever reason it is that caused it, I'm always willing the time to pass by quickly so that he will get this over and done with and we can be healthy and happy again the next day.
At least I'm glad this is over.
Anyway, a bit of good news though. We have requested for funding for Jonathan's new buggy and it has been approved!
Jonathan is so tall and his current Convaid Cruiser, a 14 inch Cordura, is already too short for him. His legs stick out from the buggy seat and it's super uncomfortable. He has used this for about 3 years and it's time for a change.
DNR did ask us to go down and try other buggies but we have decided that since Jonathan is already used to the tilt of this Cruiser, we might as well get the same model. Hopefully he doesn't "swim" in it width wise because Jonathan is slim. Can't wait for it to come in a month's time. Thank you Lord for this provision when we needed it.
We shall look forward to another day. I the meantime, hope everyone who visits my blog here is healthy and strong.
God bless!
Time flies when you don't keep track.
Everyday is the same activities. Jonathan wakes up, request to listen to some Christian worship songs, then it's time for feed, and after half an hour, he would want to watch his TV game shows.
Then the whole day will be repeated activities. I'm not bothered as long as he stays healthy.
Well...Jonathan had a sudden vomitting episode that sprang out from nowhere just 2 days ago. It's odd that it comes suddenly, he throws up from 10pm till maybe around 2am and then with all the medication we gave him, it helped him sleep till the next morning and he wakes up smiling and happy.
My friend said perhaps it's because his tummy is windy "hong". I don't know. I would think it's a gag reflex. Whenever there's drainage from the nose, it irritates his throat and then he starts coughing and stimulates the gag reflex and thus causing him to throw up. There are times we know it's the tummy that churns. So it's rather confusing.
But for whatever reason it is that caused it, I'm always willing the time to pass by quickly so that he will get this over and done with and we can be healthy and happy again the next day.
At least I'm glad this is over.
Anyway, a bit of good news though. We have requested for funding for Jonathan's new buggy and it has been approved!
Jonathan is so tall and his current Convaid Cruiser, a 14 inch Cordura, is already too short for him. His legs stick out from the buggy seat and it's super uncomfortable. He has used this for about 3 years and it's time for a change.
See how his butt is almost sticking out of the seat.
DNR did ask us to go down and try other buggies but we have decided that since Jonathan is already used to the tilt of this Cruiser, we might as well get the same model. Hopefully he doesn't "swim" in it width wise because Jonathan is slim. Can't wait for it to come in a month's time. Thank you Lord for this provision when we needed it.
We shall look forward to another day. I the meantime, hope everyone who visits my blog here is healthy and strong.
God bless!
Monday, March 23, 2015
REST IN PEACE MR LEE KUAN YEW
Our first Prime Minister passed away this morning. Remembering a great leader
who made Singapore into what she is today.
Tuesday, February 24, 2015
JONATHAN'S LOVE FOR JALAN BATU HOME
Jonathan loves the flat at Jalan Batu. Ever since he was young, we always brought him there to spend time with his grandparents (daddy's) and H will bring him up and down team common corridor staircase.
Many years have passed and it's still his favourite place.
He's always wanted to go there. But because of his vomiting issues we always avoid taxi rides.
But a few days before CNY, he asked us to bring him there and so we did. Thankfully our return home was OK and he didn't throw up. Then on the first day of CNY, he woke up at 6am! thinking we will be bringing him there to bai nian. But this year, my Mil is staying with my sister-in-law so the house is quite. He kept asking to go and so on the 3rd day of CNY, we brought him there again.
Taxi rides there will always be filled with excitement and only daddy can carry him in the cab to calm him down LOL.
Here are some photos to enjoy. Hope you all had a great CNY celebrations. Wishing you all a great year ahead!
Many years have passed and it's still his favourite place.
He's always wanted to go there. But because of his vomiting issues we always avoid taxi rides.
But a few days before CNY, he asked us to bring him there and so we did. Thankfully our return home was OK and he didn't throw up. Then on the first day of CNY, he woke up at 6am! thinking we will be bringing him there to bai nian. But this year, my Mil is staying with my sister-in-law so the house is quite. He kept asking to go and so on the 3rd day of CNY, we brought him there again.
Taxi rides there will always be filled with excitement and only daddy can carry him in the cab to calm him down LOL.
Here are some photos to enjoy. Hope you all had a great CNY celebrations. Wishing you all a great year ahead!
First trip back before CNY
2nd trip back on 3rd day of CNY. Wanted to have breakfast at Macs or KFC kallang but was too crowded. So we walked back to Blk 6 and had our meal at the hawker center.
Friday, February 06, 2015
JONATHAN IS 18 YEARS OLD TODAY!
Jonathan officially turns 18 today. Born on Friday, 6 February 1997.
I learned that the date and day in 2015 is exactly the same as in 1997. So this literally brings me back to the day when the trauma birth happened.
Fast forward to 2015, I'm thankful to Daddy God for the progress that Jonathan has made. From an intelligent young boy to now, a more intelligent young man.
Yesterday, caregivers from Starpal came with an ice cream cake for Jonathan. And the surprise we got was a special guest : Dr Chong! SereneW didn't tell me. Wanted to give us a surprise and we trully were! Well...I was :)
I'm thankful to God for this great team. We had lunch and good chat (mostly chatters from me hahaha). But it was a relaxed atmosphere and Jonathan did well too. Thank you Lord, continue to bless this special team with strength and wisdom.
Dr Chong, as usual, was the joker, asking Jonathan if he wanted home schooling (to which Jonathan kept staring at him), followed by asking Jonathan if he wanted to meet girls since he's turning 18. haha. Of course Jonathan said no. Only mommy is enough. haha! Thanks Jonathan :)
While chatting with Dr Chong today, he asked me when did I quit my job to become a full time caregiver. I said "since Jonathan was born".
Now as I think about it, I tell myself "wow...18 years". It's been a long time. What have I done? But to see Jonathan as he is today, there is a sense of "achievement". I pray for more good things to come for him.
I learned that the date and day in 2015 is exactly the same as in 1997. So this literally brings me back to the day when the trauma birth happened.
Fast forward to 2015, I'm thankful to Daddy God for the progress that Jonathan has made. From an intelligent young boy to now, a more intelligent young man.
Yesterday, caregivers from Starpal came with an ice cream cake for Jonathan. And the surprise we got was a special guest : Dr Chong! SereneW didn't tell me. Wanted to give us a surprise and we trully were! Well...I was :)
I'm thankful to God for this great team. We had lunch and good chat (mostly chatters from me hahaha). But it was a relaxed atmosphere and Jonathan did well too. Thank you Lord, continue to bless this special team with strength and wisdom.
Dr Chong, as usual, was the joker, asking Jonathan if he wanted home schooling (to which Jonathan kept staring at him), followed by asking Jonathan if he wanted to meet girls since he's turning 18. haha. Of course Jonathan said no. Only mommy is enough. haha! Thanks Jonathan :)
While chatting with Dr Chong today, he asked me when did I quit my job to become a full time caregiver. I said "since Jonathan was born".
Now as I think about it, I tell myself "wow...18 years". It's been a long time. What have I done? But to see Jonathan as he is today, there is a sense of "achievement". I pray for more good things to come for him.
Thank
you Lord...we will continue to walk in faith, full of your grace and
wisdom for Jonathan, to be able to speak more words other than "no!" and
to put on his shoes and walk. For we look not at what was past but to
know that the finished work of Jesus at the cross has given us victory
over every obstacle, sickness and diseases. We look forward to
restoration, we look forward to joy and we look forward to greater
glory.
Thank you especially to both of our (H's & my) family members and also friends for your constant encouragement and support. Jonathan knows he is loved by everyone near and far. We love you all too! ♥♥♥
Here are some pictures we took today:
Thanks for visiting. God bless everyone you richly!
Thank you especially to both of our (H's & my) family members and also friends for your constant encouragement and support. Jonathan knows he is loved by everyone near and far. We love you all too! ♥♥♥
Here are some pictures we took today:
Thanks for visiting. God bless everyone you richly!
Wednesday, January 14, 2015
MY NEW MACHINE - MUG PRINTER
I acquired a new machine last year. It's a mug press! Something that Ihave always wanted for a long time.
So if you or your friends would love to have a personalized mug like this (picture below):
Just before Christmas, H's friend decided to print personalized mugs for his staff of only 8. I thought it was a great idea! So if you have any staff under your department, you can consider as gifts. Don't have to wait till Christmas!
Do send me an EMAIL. Price per printed mug is $15. Comes with a box too. If you order more, then price will be lesser. Just let me know quantity. All designs can be full color.
Hope to hear from you!
God bless!
So if you or your friends would love to have a personalized mug like this (picture below):
Just before Christmas, H's friend decided to print personalized mugs for his staff of only 8. I thought it was a great idea! So if you have any staff under your department, you can consider as gifts. Don't have to wait till Christmas!
Do send me an EMAIL. Price per printed mug is $15. Comes with a box too. If you order more, then price will be lesser. Just let me know quantity. All designs can be full color.
Hope to hear from you!
God bless!
JONATHAN NEEDS A NEW WHEELCHAIR BUGGY
I'm trying to prolong Jonathan's current Convaid buggy. But after seeing this photo (below) again and again, it's really time to get a new one.
This is the 14inch cruiser we bought a few years back. I think Jonathan started growing taller in 2014. A sudden surge in height.
The only drawback about getting a bigger cruiser (16 inch) is that it may be too big for the taxi car boot. I met a friend today and she told me that the day care her son goes to, has some kids who are already using the 16 inch buggy and most of them don't go out anymore because the buggy is big and can't fit into the car boot.
We're still debating. There are other buggies to reconsider, like the Metro. But this is a buggy with canvas mesh seat and I don't know how long it will last.
So...current buggy is getting small and the big buggy also must consider. But it is inevitable that we have to get the bigger buggy soon.
Anyone out there willing to buy us a MPV/SUV/van so that we can wheel the whole buggy into the vehicle and not take taxi as carrying him in and out of the cab is becoming difficult.
God bless!
This is the 14inch cruiser we bought a few years back. I think Jonathan started growing taller in 2014. A sudden surge in height.
The only drawback about getting a bigger cruiser (16 inch) is that it may be too big for the taxi car boot. I met a friend today and she told me that the day care her son goes to, has some kids who are already using the 16 inch buggy and most of them don't go out anymore because the buggy is big and can't fit into the car boot.
We're still debating. There are other buggies to reconsider, like the Metro. But this is a buggy with canvas mesh seat and I don't know how long it will last.
So...current buggy is getting small and the big buggy also must consider. But it is inevitable that we have to get the bigger buggy soon.
Anyone out there willing to buy us a MPV/SUV/van so that we can wheel the whole buggy into the vehicle and not take taxi as carrying him in and out of the cab is becoming difficult.
God bless!
Tuesday, January 06, 2015
HAPPY 2015!
We ushered in 2015 quietly with a prayer. It's been a long 2014, although time passed quickly. But we saw a progressively stronger Jonathan.
I thank God for seeing us through and for giving us grace and strength to shoulder on. So looking forward to 2015 as the message was The Year of His Restoration.
Lets look forward to many great things and I wish everyone who visits and reads my journal, a blessed 2015 filled with good health, joy, peace, strength and wealth!
I thank God for seeing us through and for giving us grace and strength to shoulder on. So looking forward to 2015 as the message was The Year of His Restoration.
Lets look forward to many great things and I wish everyone who visits and reads my journal, a blessed 2015 filled with good health, joy, peace, strength and wealth!
Wednesday, November 19, 2014
SICKNESS AND STAR PAL
On November 3rd evening, Jonathan started showing signs of unwell again. The vomiting started at lightly at 8pm. At 9, we brought him to the GP and thought of giving him the jab. But I remembered the last one he had (Maxilon or something) really made him hyper and he couldn't sleep properly. So doctor said just stick to suppositories.
By 10pm, the vomting became worse. And he continued through the whole night. On any other occasion when he is unwell, he would normally stop retching around 4am. But that night on the 4th, he was still doing it right up to 7am. Although not frequently but mostly on the hour or two. Vomit contents mostly dark brown.
We were contemplating to bring him to KK but suddenly remembered Star Pals and their after office hours on call. Spoke to the Doctor, who advised me to stop all feeds, even medication. He explained that Jonathan would not be dehydrated even without water for one night.
Doctor arrived within the half hour, checked Jonathan and decided to give him a jab. The injection worked and immediately the retching stopped. I was told that the medicine for the jab was more to control the brain. Previous injections at the GP were more for the intestines, to stop the tummy from churning.
Perhaps this is the reason why most of the time, even after receiving the jab from the GP, he would still be retching. But I was glad that Jonathan finally stopped that morning.
And finally, both of us were able to have a good deep sleep for at least another hour.
Doctor further dispensed 2 other medication for Jonathan which we had to pick up from the local pharmacy.
Thank God for Star Pals! We were just introduced to this program by Jonathan's neurologist who felt that this service will be beneficial for us. And we only had one meeting with Nurse Serene. I must say God really planned it all for us.
Dr Chong is a very gentle doctor. He was very reassuring and although he had a meeting to attend that morning, he came to us first before going to his office.
By 10pm, the vomting became worse. And he continued through the whole night. On any other occasion when he is unwell, he would normally stop retching around 4am. But that night on the 4th, he was still doing it right up to 7am. Although not frequently but mostly on the hour or two. Vomit contents mostly dark brown.
We were contemplating to bring him to KK but suddenly remembered Star Pals and their after office hours on call. Spoke to the Doctor, who advised me to stop all feeds, even medication. He explained that Jonathan would not be dehydrated even without water for one night.
Doctor arrived within the half hour, checked Jonathan and decided to give him a jab. The injection worked and immediately the retching stopped. I was told that the medicine for the jab was more to control the brain. Previous injections at the GP were more for the intestines, to stop the tummy from churning.
Perhaps this is the reason why most of the time, even after receiving the jab from the GP, he would still be retching. But I was glad that Jonathan finally stopped that morning.
And finally, both of us were able to have a good deep sleep for at least another hour.
Doctor further dispensed 2 other medication for Jonathan which we had to pick up from the local pharmacy.
Thank God for Star Pals! We were just introduced to this program by Jonathan's neurologist who felt that this service will be beneficial for us. And we only had one meeting with Nurse Serene. I must say God really planned it all for us.
Dr Chong is a very gentle doctor. He was very reassuring and although he had a meeting to attend that morning, he came to us first before going to his office.
He started Star Pals to help children with life-limit illness and special needs. You can read the article about him HERE.
Lord thank you for connecting us to Star Pals and thank you for blessing Jonathan with continued good health.
Lord thank you for connecting us to Star Pals and thank you for blessing Jonathan with continued good health.
NEURO APPOINTMENT AND BUTTON CHANGE 23RD OCTOBER 2014
Thankfully Jonathan was willing to go to KK that morning on the 23rd of October. He didn't
even protest. But I did tell him it was time for button change and he was
alright with it. Normally it would be a struggle just to get him onto
the buggy.
The waiting time for his appointment with the neurologist was almost 1.5 hours. The doctor said, "it was good to see Jonathan again after 1.5 years." Haha.
Review went well. We found out he is already 150cm tall. And that's almost my height! They will have to use a longer measuring tape in future haha.
The waiting time for his appointment with the neurologist was almost 1.5 hours. The doctor said, "it was good to see Jonathan again after 1.5 years." Haha.
Review went well. We found out he is already 150cm tall. And that's almost my height! They will have to use a longer measuring tape in future haha.
After Neuro, we rushed down to surgery for the button change. I was happy
that an experienced nurse was there. She always changes buttons at a
fast and efficient manner. First thing she asked me was "Isn't he
afraid?" Well...if he was he didn't show it. Our boy was as cool as a
cucumber LOL. They know him by name and even after so many years they
will still ask if he's nervous. I should have said I'm the nervous one
haha.
I scooped him onto the bed, they got their things ready, applied lubricant around the stoma and then nurse said "sorry ah". The next thing I heard was a "pop" and a little grunt from Jonathan and done. All within 30 seconds. Very little bleeding. Thank God for that.
We fed him there. It was meal time and also in a way to test the button. Gave him panadol to ease any discomfort.
"Do you have any pain at the button area?", I asked.
He replied "no".
Thank you Lord everything went well. Till next year...
I scooped him onto the bed, they got their things ready, applied lubricant around the stoma and then nurse said "sorry ah". The next thing I heard was a "pop" and a little grunt from Jonathan and done. All within 30 seconds. Very little bleeding. Thank God for that.
We fed him there. It was meal time and also in a way to test the button. Gave him panadol to ease any discomfort.
"Do you have any pain at the button area?", I asked.
He replied "no".
Thank you Lord everything went well. Till next year...
Monday, October 27, 2014
ONE PICTURE SAYS IT ALL
Jonathan loves to lie down next to me whenever I lay down on his mat. His favourite position is to roll over to me, place his head on my lower back and uses my body as his pillow.
I've taken a few pictures of that position before but I cannot remember if I have ever posted it here. Oh yes I did! It is HERE :)
Anyway, it was one of those days and that day, he decided to hold my hand and when I stretched my arm, his had just continued to rest there. So I decided to take a picture.
After I took this photo, while uploading it into Facebook, I realised the word GIFT was just above my arm. I was really surprise by it. Yes....Jonathan's name means GRACIOUS GIFT OF GOD. He is a gift, no matter what.
This picture says it all. It was so nice :)
God bless!
I've taken a few pictures of that position before but I cannot remember if I have ever posted it here. Oh yes I did! It is HERE :)
Anyway, it was one of those days and that day, he decided to hold my hand and when I stretched my arm, his had just continued to rest there. So I decided to take a picture.
This picture says it all. It was so nice :)
God bless!
REFLECTIONS OF MY BIRTHDAY 19 OCTOBER 2014
My special day started at 12 midnight on 19th. H placed his hand on my head and prayed a wonderful and nice prayer over me.
I'm grateful to my family. My love and my son. thank you for your unfailing love for me.
And so my day came and went and I'm reflective only now when the "day" has ended.
The first 20 years was of baby steps to youthful fun.
The next 7 years was of career, courtship and one step into marriage.
These past 21 years have been eventful...of married life, family life and back to trying to lead a life with passion.
Who would have thought that 48 years have passed by and I still think I'm the baby girl of my big happy family and a mother of a child with special needs, who laughs at my sometimes childishness, actually, most of the time.
I'm not shy to say I'm 48. Sometimes I look at others and i think "he/she is younger than me? and he/she is more mature than me!" hahaha. I'm thinking...I'm going to hit 50 in two years and I'm like....wake up kid!!! hahaha
I've seen life in birth, I've seen death occurred, I've seen mid life crisis in others and I've seen happiness in most. Although one brings joy and the other brings sadness, there's not telling when or where good or bad will happen.
So at 48, I've asked for health, wealth, happiness and long life. At 48, I seek to still improve my skills, dare to challenge myself in things I don't actually do all the time; and at 48.....live life to the fullest no matter what.
Live a life...laugh in life...take pleasure in life. Don't be nasty...don't fret...don't criticize. Most of all, I try not to let the downs make me go downer, if there is such a word. But I shall let the downs bring me up, because the word "down", when read upside-down, starts with a U and ends with a P.
UmoP.
Easy to write and say but sometimes hard to achieve. Still I can tell you....it's such a pleasure and elated feeling when you are able to do it. And I'm proud to say I have achieved some.
I moan and I groan when things don't go my way. Still acting like a big fat kid. I've got a long way to go in this area hahaha.
So at 48, a BIG AND HUGE thank you all my wonderful family and my dearest friends near and far. For all your best wishes of blessings and love and gifts. It's so nice to have a birthday and it's so nice to know that you are loved again and again every year.
And I'll always be reminded:
F or I have watched over you.
O ver all the years you have lived.
R edeemed by My Son's death at the cross.
T otally saved and given unmerited grace.
Y ou shall be blessed for I AM your blesser.
E ven though the valley is hard to travel,
I will never leave you nor forsake you.
G ood will turn out from the bad that you have experienced
H ope will become real.
T ake heart....because I will be there for you.
48.....
The next day, H bought me a cute little fan. He said it will keep me cool while I work without turning on the air-con. I love it! USB plug and it's not too strong that gives me headache when blowing at my direction and yet, it does keep me cool. It oscillates as well which is good. Thanks dear!
Then my good friend and Unnie, Olive, gave me a nice paper bag with beautiful ribbons. She knows I love ribbons and when she was in Vietnam, she bought these for me. Thanks unnie! Too nice to use them! hahaha
Love to all and God bless everyone for reading this post of my journal :)
I'm grateful to my family. My love and my son. thank you for your unfailing love for me.
And so my day came and went and I'm reflective only now when the "day" has ended.
The first 20 years was of baby steps to youthful fun.
The next 7 years was of career, courtship and one step into marriage.
These past 21 years have been eventful...of married life, family life and back to trying to lead a life with passion.
Who would have thought that 48 years have passed by and I still think I'm the baby girl of my big happy family and a mother of a child with special needs, who laughs at my sometimes childishness, actually, most of the time.
I'm not shy to say I'm 48. Sometimes I look at others and i think "he/she is younger than me? and he/she is more mature than me!" hahaha. I'm thinking...I'm going to hit 50 in two years and I'm like....wake up kid!!! hahaha
I've seen life in birth, I've seen death occurred, I've seen mid life crisis in others and I've seen happiness in most. Although one brings joy and the other brings sadness, there's not telling when or where good or bad will happen.
So at 48, I've asked for health, wealth, happiness and long life. At 48, I seek to still improve my skills, dare to challenge myself in things I don't actually do all the time; and at 48.....live life to the fullest no matter what.
Live a life...laugh in life...take pleasure in life. Don't be nasty...don't fret...don't criticize. Most of all, I try not to let the downs make me go downer, if there is such a word. But I shall let the downs bring me up, because the word "down", when read upside-down, starts with a U and ends with a P.
UmoP.
Easy to write and say but sometimes hard to achieve. Still I can tell you....it's such a pleasure and elated feeling when you are able to do it. And I'm proud to say I have achieved some.
I moan and I groan when things don't go my way. Still acting like a big fat kid. I've got a long way to go in this area hahaha.
So at 48, a BIG AND HUGE thank you all my wonderful family and my dearest friends near and far. For all your best wishes of blessings and love and gifts. It's so nice to have a birthday and it's so nice to know that you are loved again and again every year.
And I'll always be reminded:
F or I have watched over you.
O ver all the years you have lived.
R edeemed by My Son's death at the cross.
T otally saved and given unmerited grace.
Y ou shall be blessed for I AM your blesser.
E ven though the valley is hard to travel,
I will never leave you nor forsake you.
G ood will turn out from the bad that you have experienced
H ope will become real.
T ake heart....because I will be there for you.
48.....
The next day, H bought me a cute little fan. He said it will keep me cool while I work without turning on the air-con. I love it! USB plug and it's not too strong that gives me headache when blowing at my direction and yet, it does keep me cool. It oscillates as well which is good. Thanks dear!
Then my good friend and Unnie, Olive, gave me a nice paper bag with beautiful ribbons. She knows I love ribbons and when she was in Vietnam, she bought these for me. Thanks unnie! Too nice to use them! hahaha
Love to all and God bless everyone for reading this post of my journal :)
BARD BUTTON CHANGE ON 23RD OCTOBER 2014
It was time for changing the BARD button again. Two days before 23rd, I called the Surgical Department to request for a time slot to change the feeding button. Jonathan heard our telephone conversation. Even though I tried to speak in words that didn't reveal "hospital", "KK', etc, he knew what it was all about. Of course he reacted with a little anger but was soon calmed down after I explained the need to do so.
Thankfully Jonathan was willing to go to KK that morning. He didn't even protest. But I did remind him it is time for button change and he was alright with it. Normally it would be a struggle just to get him onto the buggy.
The waiting time for his appointment with the neurologist was almost 1.5 hours. The doctor said, "it was good to see Jonathan again after 1.5 years." Haha. Review went well. That day we found out he is already 150cm tall. And that's almost my height! They will have to use a longer measuring tape in future haha. I'm grateful to Dr C for caring about Jonathan's well-being. She has arranged for us to be under STAR Pals. We will be meeting the nurse representative this coming week.
Thankfully Jonathan was willing to go to KK that morning. He didn't even protest. But I did remind him it is time for button change and he was alright with it. Normally it would be a struggle just to get him onto the buggy.
The waiting time for his appointment with the neurologist was almost 1.5 hours. The doctor said, "it was good to see Jonathan again after 1.5 years." Haha. Review went well. That day we found out he is already 150cm tall. And that's almost my height! They will have to use a longer measuring tape in future haha. I'm grateful to Dr C for caring about Jonathan's well-being. She has arranged for us to be under STAR Pals. We will be meeting the nurse representative this coming week.
After Neuro rushed down to surgery for the button change. I was happy
that an experienced nurse was there. She always changes buttons at a
fast and efficient manner. First thing she asked me was "Isn't he
afraid?" If Jonathan was, he didn't show it. Haha. Our boy was as cool as a
cucumber haha. They know him by name and even after so many years they
will still ask if he was nervous. I should have said I'm the nervous one
haha.
I scooped him onto the bed, they got their things ready, applied lubricant around the stoma and then nurse said "sorry ah". The next thing I hear was a "pop" and a little grunt from Jonathan and done. All within 30 seconds. Very little bleeding. Thank God for that.
We fed him there. It was meal time and also in a way to test the button. gave him panadol to ease any discomfort. The young girl next door was crying and screaming and the prince kept wanting to peek through the door.
"Do you have any pain at the button area?", I asked. He replied "no".
We reached home and all was well. Jonathan didn't show any motion sickness even though I had his inhalant ready in the bag in case we needed it.
I'm very proud of Jonathan for going through this procedure year after year.
Thank you Lord everything went well. Till next year. Thanks everyone for your encouragements and reading my journal.
I scooped him onto the bed, they got their things ready, applied lubricant around the stoma and then nurse said "sorry ah". The next thing I hear was a "pop" and a little grunt from Jonathan and done. All within 30 seconds. Very little bleeding. Thank God for that.
We fed him there. It was meal time and also in a way to test the button. gave him panadol to ease any discomfort. The young girl next door was crying and screaming and the prince kept wanting to peek through the door.
"Do you have any pain at the button area?", I asked. He replied "no".
We reached home and all was well. Jonathan didn't show any motion sickness even though I had his inhalant ready in the bag in case we needed it.
I'm very proud of Jonathan for going through this procedure year after year.
Thank you Lord everything went well. Till next year. Thanks everyone for your encouragements and reading my journal.
Tuesday, October 07, 2014
HULA HOOPING EXERCISE
I
watched a doctor program on tv recently and they introduced hoola/hula
hooping as a form of exercise. I decided to check it out. I found out
that hoola hooping can help strengthen the back muscle amongst other
benefits. And so i ordered one online from www.hulahoopsingapore.com and received it end September. May, the owner of the hulahoop company, said for the first week, I should hoola for 5 minutes per day so that my waist will not be sore and slowly get used to the hoop.
I tried and the hoop kept falling. It's not easy to control and the foam hoop, which is 100cm in diameter (according to Mary is ideal for my height) is 3 lbs. This hoop has adjustable weight by adding small iron bars inside the hollow part of the hoop that adds up to at least 5 lbs. The foam hoop cost $69.90. Plus shipment courier I paid a total of $69.90.
It's quite funny trying to keep the hoop up. Jonathan kept smiling at me. Haha. By the end of 5 minutes I was actually perspiring. H said it's because I had to squat and stand just picking up the hoop that dropped so that's counted as exercise already haha. Ya very funny!
I didn't give up. Every chance I get in between taking care of Jonathan, work and house chores, I'll pick up the hoop and start hoola-ing.
Today, I did a few 2-5 minutes exercises. Each time I did about 200 rounds, the last slot I managed to go up to 350! I kind of found my rhythm. But sometimes when I get distracted, the hoop starts to move down and then I will speed up my movement and it moves up to my waist again.
I do find that it helps with my back. For the last 2 days, I don't seem to feel the nerve aching at all. I don't guarantee that this is the result of the hoola-hooping but only time will tell.
But it's been fun. At least i get a break in between what I was doing that time and it gives Jonathan a chance to laugh at my comical movements. haha.
Stay healthy everyone!
Since Jonathan was not well, I didn't touched it till a few days ago.
I tried and the hoop kept falling. It's not easy to control and the foam hoop, which is 100cm in diameter (according to Mary is ideal for my height) is 3 lbs. This hoop has adjustable weight by adding small iron bars inside the hollow part of the hoop that adds up to at least 5 lbs. The foam hoop cost $69.90. Plus shipment courier I paid a total of $69.90.
It's quite funny trying to keep the hoop up. Jonathan kept smiling at me. Haha. By the end of 5 minutes I was actually perspiring. H said it's because I had to squat and stand just picking up the hoop that dropped so that's counted as exercise already haha. Ya very funny!
I didn't give up. Every chance I get in between taking care of Jonathan, work and house chores, I'll pick up the hoop and start hoola-ing.
Today, I did a few 2-5 minutes exercises. Each time I did about 200 rounds, the last slot I managed to go up to 350! I kind of found my rhythm. But sometimes when I get distracted, the hoop starts to move down and then I will speed up my movement and it moves up to my waist again.
I do find that it helps with my back. For the last 2 days, I don't seem to feel the nerve aching at all. I don't guarantee that this is the result of the hoola-hooping but only time will tell.
But it's been fun. At least i get a break in between what I was doing that time and it gives Jonathan a chance to laugh at my comical movements. haha.
Stay healthy everyone!
Tuesday, September 30, 2014
FIRST LUNG INJECTION AFTER SO MANY YEARS
And prayerfully the last too.
It started on Sunday (28th September) evening. He was making soft moaning sounds. Was drooling alot but after giving him medication, seemed fine.
I went off to my mom's as it was my turn to help with mom on the maid's day off. While there, I received a text from H that Jonathan was showing signs of being unwell.
Rushed home to find him with low grade fever. But escalated to 38.5° in the middle of the night.
This morning, instead of seeing a well rested kid, Jonathan began to look really lethargic. At the clinic, he started breathing heavily and the sound of phlegm coming from his chest area was really loud.
Upon seeing him, the doctor said he looked pale, perhaps we would like to admit him. He left us to decide and proceeded to administer the nebulizer to Jonathan. The nebulizer treatment opened up his airways and he became pink on the lips again. Airways were opened but his chest/lungs were still with phlegm.
Doc gave us 2 choices. Admit him at KK or return to the clinic tonight for a 2nd treatment since he was breathing better. We opted for the 2nd choice.
5 types of medications were prescribed for him. 2 types of inhalers are to be used.
Jonathan has not had a bad lung infection since 8 years ago. I don't know how it became this way although i could see he was already showing signs just a few days back.
Miraculously after the clinic visit, once at home, he started coughing out all the thick gooey secretion that were irritating his throat that caused the raspy crackling sound each time he took a breath. And after giving him chest physio, he seemed to be coughing out more.
I feel relief that he's able to cough on his own. I hate the thought of the suction tube going down his mouth and throat at the hospital.
He has protested even while hearing the discussion between H and I on bringing him to the hospital. But now, even though the fever is 38°C, he's resting and there's less sound coming from the throat.
I think it probably started because he has refused to sit on his chair lately and opting to lie down all the time. I should have been more firm. But since he was ok, it didn't occur to me that it would happened. I totally forgot about it. Huge mistake :(
Treating a child with special needs is pretty much a guessing game when it comes to medical treatment. With Jonathan, even though he understands and can tell us, he will tell you no pain, no discomfort and no problem just to avoid seeing the doctor or a trip to A&E. So it is also a guessing game to see if it's serious enough for urgent medical action to be taken. But funnily he will still tell me he needs medicine when he feels unwell. For this I'm thankful.
Last night we went for the first review at the clinic.
While he was pale and breathless in the morning, the doctor was very surprised that he recovered 50% compared to the morning.
The cough mixture he prescribed did help in a way. Instead of suppressing the coughing, this medication purposely made him cough more. That caused Jonathan to cough out all the phlegm and secretion.
Although it was a long and tough night with fever going up and down, from borderline to high of 38°, having to wake up every hour to check his temperature and making sure he doesn't choke on his thick phlegm was a little draining. He finally had a deep sleep at 5 am.
We still need to go back to the clinic daily for review until they discharge Jonathan. Thankful for our family doctor's who really takes care of our boy.
And glad we decided not to go the hospital. It would have been more tiring.
It's not the haze the caused it. He's been indoors but according to the doctor there is a strong virus strain that's going around. They have experienced a lot of patients with chest infection.
The chest therapy still continues. the inhaler therapy will also still continue. But as of this morning, I'm thankful the fever has subsided.
Now I have to handle the diahroea issue as the Augmenting antibiotic he's taking now causes watery stools. But I'm can't complain. Just have to wait patiently while giving him Lacteofort solution to ease the diahroea.
let this episode be over soon!
Lord, thank you that "by His stripes Jonathan is healed" 1 Peter 2:24
God bless!
It started on Sunday (28th September) evening. He was making soft moaning sounds. Was drooling alot but after giving him medication, seemed fine.
I went off to my mom's as it was my turn to help with mom on the maid's day off. While there, I received a text from H that Jonathan was showing signs of being unwell.
Rushed home to find him with low grade fever. But escalated to 38.5° in the middle of the night.
This morning, instead of seeing a well rested kid, Jonathan began to look really lethargic. At the clinic, he started breathing heavily and the sound of phlegm coming from his chest area was really loud.
Upon seeing him, the doctor said he looked pale, perhaps we would like to admit him. He left us to decide and proceeded to administer the nebulizer to Jonathan. The nebulizer treatment opened up his airways and he became pink on the lips again. Airways were opened but his chest/lungs were still with phlegm.
Doc gave us 2 choices. Admit him at KK or return to the clinic tonight for a 2nd treatment since he was breathing better. We opted for the 2nd choice.
5 types of medications were prescribed for him. 2 types of inhalers are to be used.
Jonathan has not had a bad lung infection since 8 years ago. I don't know how it became this way although i could see he was already showing signs just a few days back.
Miraculously after the clinic visit, once at home, he started coughing out all the thick gooey secretion that were irritating his throat that caused the raspy crackling sound each time he took a breath. And after giving him chest physio, he seemed to be coughing out more.
I feel relief that he's able to cough on his own. I hate the thought of the suction tube going down his mouth and throat at the hospital.
He has protested even while hearing the discussion between H and I on bringing him to the hospital. But now, even though the fever is 38°C, he's resting and there's less sound coming from the throat.
I think it probably started because he has refused to sit on his chair lately and opting to lie down all the time. I should have been more firm. But since he was ok, it didn't occur to me that it would happened. I totally forgot about it. Huge mistake :(
Treating a child with special needs is pretty much a guessing game when it comes to medical treatment. With Jonathan, even though he understands and can tell us, he will tell you no pain, no discomfort and no problem just to avoid seeing the doctor or a trip to A&E. So it is also a guessing game to see if it's serious enough for urgent medical action to be taken. But funnily he will still tell me he needs medicine when he feels unwell. For this I'm thankful.
Last night we went for the first review at the clinic.
While he was pale and breathless in the morning, the doctor was very surprised that he recovered 50% compared to the morning.
The cough mixture he prescribed did help in a way. Instead of suppressing the coughing, this medication purposely made him cough more. That caused Jonathan to cough out all the phlegm and secretion.
Although it was a long and tough night with fever going up and down, from borderline to high of 38°, having to wake up every hour to check his temperature and making sure he doesn't choke on his thick phlegm was a little draining. He finally had a deep sleep at 5 am.
We still need to go back to the clinic daily for review until they discharge Jonathan. Thankful for our family doctor's who really takes care of our boy.
And glad we decided not to go the hospital. It would have been more tiring.
It's not the haze the caused it. He's been indoors but according to the doctor there is a strong virus strain that's going around. They have experienced a lot of patients with chest infection.
The chest therapy still continues. the inhaler therapy will also still continue. But as of this morning, I'm thankful the fever has subsided.
Now I have to handle the diahroea issue as the Augmenting antibiotic he's taking now causes watery stools. But I'm can't complain. Just have to wait patiently while giving him Lacteofort solution to ease the diahroea.
let this episode be over soon!
Lord, thank you that "by His stripes Jonathan is healed" 1 Peter 2:24
God bless!
Sunday, September 28, 2014
BLESSING FROM GOD ON 25 SEPTEMBER 2014
While feeding Jonathan this morning, halfway through the milk feed
while I was pouring the milk into the syringe, he wanted to change a
video clip. But instead of telling me, he swung his arm. Well...his arm
hit the tube, it became dislodged from the feeding button and the
syringe also slipped off from my hand. Milk splashed all
over the mat where he was lying on and falling on me and the iPad. My
arm and his arm were covered in milk. Naturally, I blew my top. This is
not the first time he's done it. Well I can't totally blame him. H has
been telling me to be more alert because that's what Jonathan has been
doing lately.
So....
I'm very very thankful that the Lord sent family to cheer me up. They are my cousins Meng, Tay Grace and Sharon Tay; and also so my brother Larry and sis in law Mary.
Sil Mary texted me to say they are making a special delivery.
And it came in the form of a big packet of Chey Sua fried carrot cake. The "delicacy" that I have been wanting to savor for a long time but have never found the chance to go down.
Thank you Lord for this timely gift of joy. Small as it may seem for some. But the huge gesture that came with it means a lot to me and touchd my heart.
Every mouth I took was punctuated with "oh my gosh...so delicious!" Sounds a little too much right? But that's what I felt with each mouthful.
Thanks cousins and brother and sil. The Lord used you to cheer me up. God bless you all abundantly.
I'm thankful that the rest of today will continue to be great today and won't allow anything to dampen my spirits.
If you want some really delicious comfort food, do head over to Chey Sua Carrot Cake stall at:
Toa Payoh Town Council, Lorong 2 Toa Payoh, Singapore 311125
So....
I'm very very thankful that the Lord sent family to cheer me up. They are my cousins Meng, Tay Grace and Sharon Tay; and also so my brother Larry and sis in law Mary.
Sil Mary texted me to say they are making a special delivery.
And it came in the form of a big packet of Chey Sua fried carrot cake. The "delicacy" that I have been wanting to savor for a long time but have never found the chance to go down.
Thank you Lord for this timely gift of joy. Small as it may seem for some. But the huge gesture that came with it means a lot to me and touchd my heart.
Every mouth I took was punctuated with "oh my gosh...so delicious!" Sounds a little too much right? But that's what I felt with each mouthful.
Thanks cousins and brother and sil. The Lord used you to cheer me up. God bless you all abundantly.
I'm thankful that the rest of today will continue to be great today and won't allow anything to dampen my spirits.
If you want some really delicious comfort food, do head over to Chey Sua Carrot Cake stall at:
Toa Payoh Town Council, Lorong 2 Toa Payoh, Singapore 311125
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