Sunday, November 16, 2008

CLOSE BIRTHDAYS

Had a surprise call on Skype last week from Val. All our birthdays are so close to each other so they decided to get a choco cake and celebrate together sans Me! but virtual cake is better than no cake at all!

So...we are celebrating. From Missy pG {3/O}, Me {19/O}, Aunty B {27/O}, Val {1/N} and Misstery ~ a good friend {4/D}.

Glad I'm not the oldest in the group here LOL! Sorry Aunty B!

But thanks gals! Jonathan was smiling when we sang birthday songs to us! haaaa~!

Saturday, November 15, 2008

VIDEO TAPES ~ WHEEL OF FORTUNE / PRICE IS RIGHT

Jonathan's tapes...

I was going through the tapes today. Trying to find a suitable one for him cos he has seen them all. For 11 years...I have collected these game shows, with the help from my sisters in Knoxville and Memphis Tennessee USA {cos they tape the most current shows and bring them over for Jonathan...tks sis-es!}

So...as I was going through the tapes ... I decided to count them ... 64 pieces of video tapes {each 3 hours worth of game shows}. Some tapes are extended play {from USA} ... which means 6 hours of wonder for Jonathan !!

I did manage to transfer some into DVDs. Will have to continue doing that. Thank God most of these tapes are coated with anti-fungus solution when we bought them so they are still playable.

Soon there won't be enough space for more tapes. As you can see ... the tapes are stacked up in a small cupboard of my so-called entertainment centre! LOL!





Friday, November 14, 2008

NEW BARD BUTTON

Jonathan had his feeding button changed today.

Doctor Janice Wong {the Registrar} checked Jonathan's button first and said there was no need to change the size. Moreover, she said that it was probably time to change cos the silicon button would have started breaking after being used for more than a year.

She was pretty gentle except that the button was quite difficult to pull out after being in there for more than a year.

She inserted the small rod into the button hole where I fit the feeding tube in. She tried pulling out the first time but it didn't work. You know...when you try to pry something out, it doesn't come out, then the stomach flesh just kind of stretch with it? That's what happened.

I helped her press the flesh down and she twisted and turn and within a minute, the whole button was out {the mushroom part all covered in dark gooey stuff}. She covered the stomach hole with gauze cos blood was oozing out. She said it's ok cos the granulation tissue will bleed a little. Then she took the new button, put lots of gel on it and with the same rod again, straightened the button and inserted into Jonathan's stomach within a few seconds.

Jon was very good. He didn't struggle much. I let him listen to his wheel tape and a nurse held his legs. He said it was painful but half hour later he said he was ok.

He was so hungry! I got up at 6am to feed him. They allowed me to give him water around 11am before we changed the button. After everything over it was already 11.30am and we could give him some milk.

There's still a little bleeding. It's the stomach tissue but it's subsiding.

We are so proud of him.

Well...I've always wanted to show what the BARD button is really like. Too bad I don't have a clean one but this would do... :). A brand new one is clear silicon. Don't be affected by the sight...haha. I cleaned it up before taking pictures.



This is the actual button {above}.
Size: 1.7cm {measured at the Shaft}. The mushroom looking part stays in the stomach. The bottom {that looks like the inverted "T"} sits nicely on the tummy. Because Jonathan didn't really grow too fat, we didn't have to change to a longer button.

See the hole {above}? That's where whatever I feed Jonathan comes out from. There are actually two holes. one on the left and right.


The little flap {above} is actually called the Anti-Reflux Valve. It's attached on one end and whenever liquid is fed, it will open. Once done, it will close. I purposely cut the mushroom so you can see clearly what it's like. If this valve is faulty, then liquid will flow out easily even though the cap is secured. That means, it's time for change.


This is how the button looks like when inserted into the stomach {above}.



Jonathan's tummy and the brand new button. He's still a little sore and there's still a little bleeding. I apply Vaseline Petroleum Jelly to soothe the skin around the stoma cos sometimes I use surgical tape whenever I shower him {although doctor told me it's not necessary}.

Tuesday, November 11, 2008

ISAAC LIM ~ A SPECIAL ARTIST

Isaac Lim studies in Jonathan's school. He's a cute 16 yo boy. He has muscle dystrophy.

He's very talented in art and has won many prizes. One of his paintings was even hung in the Prime Minister's Office.

I like his paintings because of their vibrant and bright colors. He truly expresses how he feels with his paintings.

To read Isaac's biography... CLICK HERE

For his art paintings... CLICK HERE

Sunday, November 09, 2008

ANOTHER SCRAPBOOKER ~ MEGHAN HEATH DYMOCK


I found this book called "WE DARE YOU" from the library. It's a scrapbook challenge coffeetable book by a few professionals. Very different from the normal scrapbookers I come across.

Meghan Heath Dymock is a professional photographer from USA. But what I like about her layouts is that she uses a lot of journalling that makes it so different.

Want to see her photographs? CLICK HERE

I may just buy the book and keep it cos there a lots of fresh "out-of-the-box" ideas.

Saturday, November 08, 2008

SUICIDE BOMBER?

My home was terrorised by smelly ants 2 weeks ago. They appear when the weather is damp.
Everytime when they appear, I will start putting those ant poison.

So while checking on them ... i saw this tiny ant carrying a big chunk of poison and crawling towards its "home". He was moving so quickly!

My mind was thinking : it doesn't know it's carrying poison and happily showing off its find. Not knowing that once consumed, the colony will die!

My brother said this ant is a suicide bomber, wiping out its whole colony! LOL! True enough. Within hours of putting the powder, ants stopped appearing.

PLAY TIME

Jonathan loves the playground. I will only bring him when his papa is around. Today, when H was on his way home, we decided to meet him near this playground {that is a few blocks away from our place} to buy ice-cream to eat in this warm weather. Then..upon seeing this playground, Jonathan asked to go.

This playground equipment is more user-friendly than the one that's at our park.

He had a chock-full of fun! Enjoy the pictures.



Playground near Block 350



Father and son managed to climb up the suspension bridge



H tried to make him walk ... but he bent his legs immediately


Before going down the slide. In the end, we let Jonathan come down on his own.









REALLY HAPPY BOY!